"Running on Empty"

          My son voices his worry that David and I will sap our energy too much in caring for my mother. He knows about the middle of the night aid to take Mom to and from the bathroom, realizes she wakes up at the crack of dawn; he understands her need of someone being constantly within calling distance. When he expresses his concern, I remind him we spend a huge portion of each evening enjoying our own interests. We spend time together watching something mindless on television while munching popcorn.

         But I do worry about those days when I’m snapping at everyone and everything because that’s an indication that I’m feeling neglected or overwhelmed. When my siblings come to give us a break, we try to sleep late and head out of the house to our favorite places like browsing through the shops in Gruene, Texas. If my brother or sister arrives early on a Friday, we sometimes escape to the cabin in the hill country. That perfect retreat always offers the respite we need. If we don’t get a long break, we find ourselves overtired.

         I love the advice everyone gives about David and I needing to take care of ourselves and get adequate breaks. What people don’t realize is that unless someone volunteers to come over to sit for an evening, we can’t take off for a stroll through a mall or an evening movie. We count ourselves fortunate that our son lives in the neighborhood. He spends an incredible amount of time “hanging” with Grammy. If I have a doctor’s appointment, I know he’ll come over. I don’t like to overuse my son, though. Is this a normal response? I don’t know. I fear the months in the future when Mom’s needs will increase, when my need for breaks won’t fall into the “occasional” category. I think on some level, I don’t want to misuse my son’s offers for help now because I may need him more in the future.

         As we enter the second year of caregiving, we’ve reached our stride. This morning, I ran Mom’s bath while David started his pre-work routine. He stepped in to help Mom into the tub. While I stayed with her as she soaked in her bubbles and listened to her new Susan Doyle cd, David packed his lunch. Then he returned to help lever Mom out of the tub, dashing from the room to get dressed while I toweled Mom dry, applied lotion to her skin, and dressed her. Entering the family room, we found David already munching on his morning cereal.

         Our lives have a steady routine that flows most days in surprising harmony. Those days where I can’t do anything right for Mom sprinkle throughout the month. Those moments when she drives me crazy because she doesn’t want anything I’ve cooked happen infrequently. Those nights where we get up two or three times with her occur no more than once or twice a week. So, for now we’re holding our own.

         And when I find that we’re “running on empty” I think we’ll fall into music, or books, or hobbies to recharge ourselves.     

Camera in hand!

Copyright 2011 Elizabeth Abrams Chapman          

"Liz and the Terrible, Horrible, No Good Day"

          Confession time today. Some days, nothing goes right. No matter how hard I smile, or what lilt I put into my voice, everything I say or do rubs my mother wrong. No matter how much she may struggle to hold onto a good mood or try to lever herself into or out of her wheelchair, Mom still needs a tremendous amount of help. And it frustrates both of us. Some days.

         One moment yesterday, we sat watching Marley &  Me. Mom likes Owen Wilson, and I reasoned this movie would give me a break from watching reruns-of-reruns-of-reruns-of-reruns of Everybody Loves Raymond.  The next second, Mom insisted I get her into her wheelchair so she could go to bed. It didn’t matter that it was only 2:30 in the afternoon. If Mom gets the idea stuck in her head that she wants to go to bed, then to bed she goes. I convinced her not to change out of her clothes, but to stretch out and take a nap while she listened to her favorite oldies radio station. I snugged her into her beloved green blanket from head to toe and left the room.

I never made it down the hallway. She rang her service bell, calling my name simultaneously. I about-faced and fairly cheerfully asked, “What do you want?”

“Nothing,” Mom replied.

“Okay,” I readjusted her blanket because her jerking left arm had entrapped itself in the fabric.

I made it down the hallway and into the family room before she called me back again. Used to this routine, I still tinted my voice with good will as I asked, “What now, Mom?”

“Nothing,” she responded yet again. This time, though, she burst into tears. Her feet kicked back and forth as she struggled to roll onto her right side. Her left arm flailed a little. Then she started crying. “I can’t.”

“Can’t what?” I moved over to her bed, sitting in her wheelchair to bring us eye to eye. I waited. Then I asked again, “Can’t what?”

“Get . . . get. . . get. . . my leg right.” At this point her crying shut down her ability to speak. “Fix it!” she managed to demand.

 I stood next to Mom’s bed in utter exasperation because I can’t “fix it.” She started trying to sit up, grabbing for her wheelchair. “Where are you going? Where are you going?” I asked. “What do you want me to do? Do you need to go to the bathroom? Bathroom?” I asked as she dragged herself into a standing position.

“Which way do I go? I can’t go.” Her frustration wept from her as I turned her into her wheelchair.

“Do you want to go watch TV now? TV or bed?” I waited a few seconds while she regained her composure. “TV or bed?”

“Bathroom.”

And so our afternoon went—round and round, on and on until I found myself yelling at the top of my lungs because I just wasn’t able to get things right. I wasn’t yelling at my mother—well, I was—but I also yelled at the “terrible, horrible, no good, very bad day.” I screamed at my powerlessness in giving her comfort. I bawled at the unfairness of our bad days and my failure to watch my tone of voice and body language. Some days, I feel hopeless. Some days.

Copyright 2011 Elizabeth Abrams Chapman