I find it difficult to
admit that I found myself yelling at my mother, in total frustration, “Stop
spitting out your food!”
I actually had to leave
the room. I stood by the kitchen sink and screamed, shook my fists at Fate, and
started crying. Then I swiped my tears with a paper towel, inhaled half-a-dozen
shaky breaths, and returned to my mother where, with a façade of calmness, I
continued spooning lunch into her mouth, apologizing profusely for losing my
temper.
As
much as I want my mother’s days to pass with as little stress as possible, I
know that my temper may bubble up when she dumps her Coke on the carpet. I know
that when she insists that she wants to get out of bed, Mom may end up yanking
her feet in the opposite direction and pull back against me in unexpectedly
forceful resistance as I try to lever her into her wheelchair. I know she may
tell me she’s hungry, and then refuse to eat. I know she may squirrel her
medications in her cheeks and spit them out into her napkin.
I
cannot take on guilt for my failings. The weight I carry as a caregiver taxes
me enough. I don’t need to add to the load by picking up bricks of self-reproach
because I’m not perfect. I know a professional caregiver would never raise her
voice at my mother, but I’m not a professional caregiver.
No
one modeled the best way to clip my mother’s finger and toe nails as she pulls
away her hand or foot in uncontrollable movement. No one showed me how to bathe
her, or wash her hair, or comb it to keep the tangles out. No one modeled the
best way to feed her to avoid choking. No one prepared me for how to help her
move her bowels. No one trained me for ten to twelve hours shifts often spent
in near isolation.
When other family members offer to
give me a break, I never think twice about accepting their help. My husband and
son, my sister and brother, have all taken up the duties of a caregiver. They
each step into my world and provide the relief I desperately need by the end of
a long day or week.
So if I find myself yelling at my
mother, I’m not going to flagellate myself for being less than perfect. I will
apologize to her, and I will remind myself that I am only human.
Copyright 2012 Elizabeth Abrams Chapman
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